A Calendar Sale to Help Defeat Friedreich's Ataxia
BabelFAmily, an international non-profit organization committed to supporting scientific research on Friedreich’s Ataxia (FA), has published an online solidarity calendar illustrated by Marina Popova, a volunteer translator with great artistic talent.
The 2011 BabelFAmily Calendar is available online at babelfamily.org in ten different languages – Italian, English, French, Spanish, Portuguese, German, Russian, Turkish, Ukrainian and Catalan - and can be downloaded and printed from this site for a donation of only €5. Click the link if you would like to receive this lovely 2011 floral calendar, by means of a small donation to support research.
FA is a genetic disease that causes degeneration of the spinal cord and cerebellum resulting in ataxia (difficulties in motor coordination), thus increasing physical limitations and barriers which can only be overcome through enormous willpower and the support of others, both medical and personal.
BabelFAmily (babelfamily.org) is non-profit organization headquartered in Spain (CIF: G-85711513). We are a worldwide group of volunteers that unite our skills to support the greater FA community of patients, doctors, researchers, scientists and associations in their mission to find treatments and a cure for Friedreich’s ataxia.
Friedreich’s ataxia is a hereditary, progressive, neurological disorder characterized by serious disruptions in balance, movement and muscle coordination. FA is typically diagnosed in childhood between the ages of 5 and 15. Symptoms include: fatigue, loss of reflexes, aggressive scoliosis, possible heart condition or diabetes, loss of balance and coordination, slurred speech and vision impairment.
Activities promoted by BabelFAmily
• Encouraging and supporting the financing of biomedical research to find treatments and a cure for Friedreich’s ataxia through partnerships and co-funding initiatives;
• Facilitating information exchanges globally and building links between FA patients, doctors, and the scientific community for improved care;
• Serving as a centralized resource to link FA associations internationally;
• Creating ongoing awareness to ensure Friedreich’s ataxia is known and understood worldwide;
• Providing a constant flow of information and news, in multiple languages, to patients and families regarding conferences, meetings, research projects, and clinical trials.