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NewswireTODAY - /newswire/ -
San Diego, CA, United States, 2008/04/28 - The runway auction event raised awareness for families who are impacted by unscreened genetic diseases. Donations supported the Lund family of Bonita, Calf. whose 9-month old son is suffering from a rare disease called Aicardi-Goutieres Syndrome.
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On behalf of local partners, businesses and clients, dk hair presented the Lund family of Bonita, Calif. with over $1300 collected from the salon’s BackStage Pass and Silent Auction on 26 March. The proceeds will directly support 9-month old Gavin who suffers from a genetic disease that is slowly paralyzing his central nervous system. The auction was held to raise awareness for unscreened genetic diseases such as Aicardi-Goutieres Syndrome and Krabbe Disease which have affected two San Diego families. In addition to the Lunds, a client of the salon recently lost their 8-month old infant to Krabbe Disease. The silent auction was held during the salon’s BackStage Pass event which launched the salon’s collection of spring and summer hair styles.
About genetic diseases
Grouped as Infantile Leukodystrophy, diseases such Aicardi-Goutieres Syndrome (AGS) and Krabbe are genetic and progressively disrupt the central nervous system by slowing down the speed at which electrical impulses can be sent throughout the body. The result is deterioration of physical and cognitive functioning and finally death (The United Leukodystrophy Foundation). Prenatal and newborn screening can aid in treatment and quality of life. On 8 April 2008, the U.S. House of Representatives approved the Newborn Screening Saves Lives Act Bill (S.1858/H.R. 3825 - excerpt can be found online at Hunter's Hope) which mandates that each state expand newborn screening. New York is the only state to screen for Krabbe Disease.
About dk hair
Located in Hillcrest, dk hair (dkhair.com) is an active supporter of local organizations such as Mama’s Kitchen, The Center, Elderhelp and others. On 26 March, co-owners David Valencia and Kenneth Bradshaw sponsored a BackStage Pass and Silent Auction to raise awareness for unscreened genetic diseases which have affected two San Diego infants. Contributions to the auction were generously received from local partners including Bumble and bumble, TRUE Cosmetics, MacCase, La Martina, Lexine Schroeder, 10 News (KGTV-TV) San Diego, Carola Eastwood, Sarah Angler, True Religion Jeans, Lovi Love Designs, Fred’s Mexican Café, Island’s Burgers and Goldie Rocks.
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