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Lilburn, GA, United States, 2013/06/03 - Supporters and athletes will pound the pavement on Saturday, June 15, at the Lilburn City Park Greenway to help raise awareness and money for research for an autoimmune disease that affects over 300,000 people across the United States.
Residents from in and around Atlanta will take part in the “Stepping Out to Cure Scleroderma” Hiking and Hotcakes walk and run on Saturday, June 15, at the Lilburn City Park Greenway. This special fundraising and awareness event, hosted by the Scleroderma Foundation’s Georgia Chapters, features a 10K road race, 5k run and a one-mile fun walk/run. The event will help raise awareness about scleroderma, a little known autoimmune disease that affects three to four times more women than men in the United States.
“This event is an excellent opportunity to raise money for research to find the cause and a cure for scleroderma”, stated Doreen Towhey, president, Scleroderma Foundation Georgia Chapter. Towhey and her family know very well the toll this autoimmune disease can take on a loved one after her sister, Kathleen Basile, was diagnosed with scleroderma. She later passed away due to complications from the disease. “Although as many people are affected by scleroderma as multiple sclerosis, this disease has only a fraction of the money spent for research spent to find a cure. We are working hard to fix that,” said Towhey.
Event registration starts at 8 am. with the 10K road race kicking off at 8:30 am. The 5K run starts at 8:45 am., and the one-mile Fun Walk/Run begins at 9 am. An awards ceremony, hotcake breakfast and kid’s carnival starts at 10 am. Registration fees are $25 for the 10K, 5K and one-mile fun run. A family of four can participate in the one-mile fun walk/run for $40.
Scleroderma is a chronic, often progressive, autoimmune disease in which the immune system attacks its own body.
Scleroderma means “hard skin.” It can cause a thickening and tightening of the skin. In some cases, it causes serious damage to internal organs including the lungs, heart, kidneys, esophagus and gastrointestinal tract. As scarring, or sclerosis, of these organs and organ systems progress, they work less effectively, and can lead to organ failure and death.
Some medications and treatments can help with certain symptoms, but there is no cure for scleroderma. The disease affects about 300,000 people across the U.S. In comparison, the same number of people are affected by multiple sclerosis.
About the Scleroderma Foundation
The Scleroderma Foundation (scleroderma.org) is the national organization for people with scleroderma, their families and friends. It was formed Jan. 1, 1998, by a merger between the United Scleroderma Foundation and the Scleroderma Federation.
Today, the Scleroderma Foundation is headquartered in Danvers, Mass. It is a 501©(3) non-profit organization dedicated to serving the interests of people living with scleroderma. The Foundation has a network of 24 chapters and more than 150 support groups committed to carrying out the three-fold mission of support, education and research. The Scleroderma Foundation makes available at least $1 million per year in new research grants to find the cause, better treatments, and a cure for scleroderma.
For more information about the Scleroderma Foundation call (800) 722-HOPE (4673).